tag:blogger.com,1999:blog-8377298907335808674.post8617786064438682572..comments2019-12-17T14:14:17.988-06:00Comments on what passes for sane on a crazy day: Oh happy day!! You're a medical oddity...Spothttp://www.blogger.com/profile/12761441168024967277noreply@blogger.comBlogger12125tag:blogger.com,1999:blog-8377298907335808674.post-28658016183569359692010-03-16T12:28:59.783-05:002010-03-16T12:28:59.783-05:00That is so sad and scary. Your family has gone thr...That is so sad and scary. Your family has gone through so much and yet your humor shines through it all. (((HUGS)))Heatherhttps://www.blogger.com/profile/16979939882187985994noreply@blogger.comtag:blogger.com,1999:blog-8377298907335808674.post-60846659581601237532010-03-02T18:38:44.987-06:002010-03-02T18:38:44.987-06:00Wow. I'm so sorry that Lu's gone through s...Wow. I'm so sorry that Lu's gone through so much...and subsequently YOU, as well.<br /><br />It never ends...does it? I'm keeping you guys in my thoughts and hoping for a more promising second opinion.kathrynhttps://www.blogger.com/profile/06152568985075401447noreply@blogger.comtag:blogger.com,1999:blog-8377298907335808674.post-14458135090203887552010-03-02T07:59:03.871-06:002010-03-02T07:59:03.871-06:00Angelia~ Me too. Welcome to ordinary! Lol.
Mindy~...Angelia~ Me too. Welcome to ordinary! Lol.<br /><br />Mindy~ I cry in the shower. No one can hear you and you're already wet.<br /><br />UnA~ Thank you! She appreciates the sympathy!<br /><br />♥SpotSpothttps://www.blogger.com/profile/12761441168024967277noreply@blogger.comtag:blogger.com,1999:blog-8377298907335808674.post-12622020463344878402010-03-01T16:05:52.674-06:002010-03-01T16:05:52.674-06:00Poor, Lu. That seriously isn't fun. I know ho...Poor, Lu. That seriously isn't fun. I know how it feels to have to get blood drawn all the time, and I feel for her! :( Hugs all your way.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8377298907335808674.post-54706522024039351442010-03-01T13:57:07.154-06:002010-03-01T13:57:07.154-06:00Once again, your humor amazes me. Although, I do ...Once again, your humor amazes me. Although, I do have to say I operate in much the same way. It's much easier to laugh than cry (I'd be remiss if I didn't add that I have been known to blubber around the house every once in awhile...it ain't always all chucks around here.) Happy Rare Disease Day! =)<br />Mindy<br />www.thesuburbanlife.commindy@thesuburbanlifehttp://www.thesuburbanlife.comnoreply@blogger.comtag:blogger.com,1999:blog-8377298907335808674.post-63593675613516699832010-03-01T12:37:42.415-06:002010-03-01T12:37:42.415-06:00That really stinks! Hugs to her. I have a super co...That really stinks! Hugs to her. I have a super common disease and it's just not special at all. :-)Angelia Sims https://www.blogger.com/profile/07651508374785160575noreply@blogger.comtag:blogger.com,1999:blog-8377298907335808674.post-86816331722458625072010-03-01T09:30:31.319-06:002010-03-01T09:30:31.319-06:00Tina~ Thanks. The other option was depressed, para...Tina~ Thanks. The other option was depressed, paranoid and angry. That didn't sound like much fun. <br /><br />Mrs. Bear~ thank you from Lu. Unfortunately, she had to work. And hippie had to return home so she didn't really think much of the day! Lol. And I know, teenagers sleep all the time!! It really wasn't much of a clue.<br /><br />DfG~ Thank you for your compliments! It's funny because the first thing I asked her was "are they flea bites?" bc we do have 8 cats. But she said they didn't itch so we let it go. I guess hindsight is 20/20.<br /><br />LMB~ It does sound wrong. I'll give you that. But we always joke about everything. It's how we deal.<br /><br />Suzicate~ I had some trouble with low platelets as well in my teen years and sometimes still (hence my beauteaous bruise the other day) but also not to Lu's extent. And I hemoraged with Sean as well. I have my fingers crossed that they will have some good options and things will go well! She's not supposed to take aspirin, motrin, or drink alcohol because they all thin the blood.<br /><br />♥SpotSpothttps://www.blogger.com/profile/12761441168024967277noreply@blogger.comtag:blogger.com,1999:blog-8377298907335808674.post-42274494990158815292010-03-01T08:39:30.260-06:002010-03-01T08:39:30.260-06:00Prayers lifted for Lu. I had a similar (no where n...Prayers lifted for Lu. I had a similar (no where near the extreme with the red spots) when I was her age...now that was a long time ago. Back then (after excessive testin) I was diagnosed with a borderline factor 8 (platelet) defiency. I'm not supposed to take aspirin. I hemoraged with my first childbirth, but did fine with the second. Lu's condition sounds much scarier than what I went through. It's a sense of humor and of course, love that gets us through those tough and scary times. I hope they will have some better options to relieve her symptoms.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8377298907335808674.post-22631885076204590202010-03-01T06:22:41.252-06:002010-03-01T06:22:41.252-06:00Wow. So much for someone so young and while I wan...Wow. So much for someone so young and while I want to say Happy Rare Disease Day, I think I'll pass. It just seems so wrong.Little Ms Bloggerhttps://www.blogger.com/profile/17208746635976950728noreply@blogger.comtag:blogger.com,1999:blog-8377298907335808674.post-39444649430160569052010-02-28T19:58:57.014-06:002010-02-28T19:58:57.014-06:00Your honesty, frankness, sensibility and humor wil...Your honesty, frankness, sensibility and humor will help Lu immeasurably, setting a fantastic example, as she cares for her health in years to come. I'm sure it's got to be difficult for you, but not once did I hear a "why us?" sound in your post, and though that's such a natural thing to consider, I find it so laudable and refreshing that you are not allowing yourself to dwell on that, but rather taking a well, what do we do from here attitude. Now that is a great mom! And by the way, I don't see how you can fault yourself at all: teenagers are always tired and complaining about things! There's no reason why you should have been able to uncover a rare disease! I'm sure if my daughter had come to me with red spots I would have assured her it was flea bites. And anyway, when the disease presented itself in a way where it was urgent that something be done, you did!Dreamfarm Girlhttps://www.blogger.com/profile/08494214244290730058noreply@blogger.comtag:blogger.com,1999:blog-8377298907335808674.post-66244608749335937582010-02-28T17:53:15.467-06:002010-02-28T17:53:15.467-06:00Holy cow, that really does sound scary.
I love t...Holy cow, that really does sound scary. <br /><br />I love that you have such a great sense of humor about the rare disease holiday, but your motherly concern still shines through. My fifteen year old would sleep her entire life away if she could, so I know I would never consider her being tired all the time as a warning sign of anything.<br /><br />Wishing Lu the best on her medical oddity day. ;)Mrsbearhttps://www.blogger.com/profile/16338013137281543065noreply@blogger.comtag:blogger.com,1999:blog-8377298907335808674.post-53004764734800540242010-02-28T14:09:08.805-06:002010-02-28T14:09:08.805-06:00You guys have had some tough stuff to deal with an...You guys have had some tough stuff to deal with and you are all so funny and cool, in spite of it, or because of it. xxTinahttps://www.blogger.com/profile/06761684333125786758noreply@blogger.com